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National Institutes of Health

Secretary’s Advisory Committee on Genetics, Health, and Society

Eighth Meeting
October 19 - 20, 2005
North Bethesda , MD

Morning Session  (Real Video)

Afternoon Session - After Lunch  (Real Video)

Afternoon Session - After Break  (Real Video)

CAPTION TEXT (HTML)
NOTE: The caption text is a record of the close captioning offered to support the video. It is not a totally accurate, verbatim transcript of the meeting. It is offered here for interest and support of the video. A correct transcript will be available on the NIH web site in due course.

A G E N D A


Wednesday, October 19, 2005

8:30 a.m. – 8:35 a.m.                 Opening Remarks

Cynthia E. Berry, J.D. - REAL VIDEO

                                                Acting SACGHS Chair

Large Population Studies Session

8:35 a.m. – 9:00 a.m.                 Session Overview and Report from the SACGHS Task Force on Large Population Studies

                                                Huntington F. Willard, Ph.D. - REAL VIDEO

                                                SACGHS Task Force Chair

 

Policy Perspectives from Members of the Scientific Community

 

9:00 a.m. – 9:20 a.m.                 Gerald R. Fink, Ph.D. - REAL VIDEO

                                                Professor of Genetics

                                                Whitehead Institute for Biomedical Research

                                                Massachusetts Institute of Technology

9:20 a.m. – 9:30 a.m.                 Q&A - REAL VIDEO

9:30 a.m. – 9:50 a.m.                Sharon Kardia, Ph.D. - REAL VIDEO

                                                Associate Professor of Epidemiology

                                                Director, Public Health Genetic Program

                                                University of Michigan School of Public Health

 

9:50 a.m. – 10:00 a.m.               Q&A - REAL VIDEO

 

10:00 a.m. – 10:20 a.m.              Richard B. Marchase, Ph.D. - REAL VIDEO

                                                Vice President for Science Policy

Federation of American Societies for Experimental Biology

 

10:20 a.m. – 10:30 a.m.              Q&A

 

10:30 a.m. – 11:15 a.m.              Roundtable Discussion with Presenters - REAL VIDEO                                      Facilitator:  Dr. Willard

 

11:15 a.m. – 11:30 a.m.              Public Comments - REAL VIDEO

 

11:30 a.m. – 12:00 p.m.              Remarks of the Acting SACGHS Chair (continued) - REAL VIDEO

                                                Ms. Berry

 

12:00 p.m. – 1:00 p.m.               LUNCH

Exploring Mechanisms for Public Engagement

1:00 p.m. – 1:20 p.m.                 REAL VIDEO - Intro

Joan A. Scott, M.S., CGC - REAL VIDEO

                                                Deputy Director

                                                Genetics & Public Policy Center

 

1:20 p.m. – 1:40 p.m.                 Toby Citrin, J.D. -  REAL VIDEO

                                                Adjunct Professor of Health Management and Policy

                                                Director, Michigan Center for Genomics and Public Health

                                                University of Michigan School of Public Health

 

                                                E. Yvonne Lewis

                                                Executive Director

                                                Faith Access to Community Economic Development

                                               

1:40 p.m. – 2:00 p.m.                 Mary Woolley, M.A. - REAL VIDEO

                                                President

                                                Research!America

 

2:00 p.m. – 3:00 p.m.                 Roundtable Discussion with Presenters - REAL VIDEO

                                                Facilitator:  Kevin FitzGerald, S.J., Ph.D., Ph.D.

 

3:00 p.m. – 3:15 p.m.                 BREAK

 

Policy Perspectives from Members of the Bioethics Community

 

3:15 p.m. – 3:35 p.m.                 Henry T. Greely, J.D. - REAL VIDEO

Deane F. and Kate Edelman Johnson Professor of Law

Stanford Law School

 

3:35 p.m. – 3:55 p.m.                 Pilar Ossorio, Ph.D., J.D. - REAL VIDEO

                                                Assistant Professor of Law and Medical Ethics

Associate Director, Center for the Study of Race and Ethnicity in Medicine

University of Wisconsin Law School


3:55 p.m. – 4:15 p.m.                 Troy Duster, Ph.D. - REAL VIDEO

                                                Professor of Sociology

                                                Director, Institute for the History of the Production of Knowledge

                                                    New York University

 

4:15 p.m. – 5:00 p.m.                 Roundtable Discussion with Presenters - REAL VIDEO

                                                Facilitator:  Ellen Fox, M.D.

 

5:00 p.m. – 6:00 p.m.                 Discussion of Next Steps, Work Plan and Final Work Product for Large Population Studies - REAL VIDEO

                                                Facilitators:  Dr. Willard and Ms. Berry

 

 

 

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